Carry Hope Forum 2026
A forum uniting experts, policymakers, patients and caregivers to advance equity, innovation, and collaboration in rare disease care.
Join Us at the Carry Hope Forum 2026!
Carry Hope Forum 2026 is a full-day gathering of voices across healthcare, policy, research, industry, and lived experience, united by one shared goal: improving the quality of life for individuals and families living with rare diseases.
From early and accurate diagnosis to equitable access to therapies, ethical use of health data, and holistic lifelong support, the forum spotlights how innovation and collaboration can drive real change. Through keynote addresses, expert panels, and powerful patient and caregiver stories, participants will gain insights into both system-level solutions and on-the-ground realities.
More than a conference, this forum is a platform to connect silos, exchange ideas, and shape a more inclusive and sustainable rare disease ecosystem in Singapore — where no family journeys alone.
A forum uniting experts, policymakers, patients and caregivers to advance equity, innovation, and collaboration in rare disease care.
Join Us at the Carry Hope Forum 2026!
Carry Hope Forum 2026 is a full-day gathering of voices across healthcare, policy, research, industry, and lived experience, united by one shared goal: improving the quality of life for individuals and families living with rare diseases.
From early and accurate diagnosis to equitable access to therapies, ethical use of health data, and holistic lifelong support, the forum spotlights how innovation and collaboration can drive real change. Through keynote addresses, expert panels, and powerful patient and caregiver stories, participants will gain insights into both system-level solutions and on-the-ground realities.
More than a conference, this forum is a platform to connect silos, exchange ideas, and shape a more inclusive and sustainable rare disease ecosystem in Singapore — where no family journeys alone.
Line-up
Dr Fereen Liew
Guest-of-honour
Good to know
Highlights
- 9 hours
- In-person
- Doors at 8am
Refund Policy
Location
Furama RiverFront
405 Havelock Road
Singapore, 169633
How would you like to get there?
Agenda
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Welcome Remarks
Executive Director & Chief Rare Advocate, Rare Disorders Society (Singapore)
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Opening Remarks
Deputy Director-General of Health (Appropriate and Value-Based Care) & Executive Director, Agency for Care Effectiveness Ministry of Health, Singapore
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Patient and Caregiver Journey
Caregiver of Sarah, Undiagnosed